Qualitative Analysis and Comparison of Externally Led, Patient-Focused Drug Development (EL-PFDD) Concepts for Autosomal Recessive Polycystic Kidney Disease (ARPKD) against Standardized Outcomes in Nephrology (SONG) Initiatives

Authors: Belle Alice Soyfer, Sorin V. Fedeles, Wendy Vanasco, Ronald D. Perrone, Max Christoph Liebau, Erum Aftab Hartung, Katherine MacRae Dell, Lisa M. Guay-Woodford, Elise Hoover, Dorothee Oberdhan

Published: 2024-10-28

DOI: 10.1681/asn.2024fj4z3w71

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